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Endometriosis Canada

Providing Care and Support

Our Story

Founded by a passionate advocate, Endometriosis Canada started as an online support group a decade ago. Fueled by the lack of dedicated Canadian resources, our founder took matters into her own hands. Today, our Facebook community offers 24/7 group chats, live events, and valuable educational materials. Join us on our journey to raise awareness and support those affected by endometriosis.

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The Importance of Recognizing Endometriosis in Children 

Endometriosis is typically viewed as an adult issue, yet it can affect children as young as 8 or 9. This chronic condition leads to severe pain and fatigue, but symptoms in younger individuals are often misunderstood or ignored, resulting in delayed diagnosis and prolonged suffering. Effects on Education and Mental Health Undiagnosed endometriosis can lead to frequent absences, trouble concentrating, emotional difficulties, and barriers to physical activities. Many children feel isolated and anxious, worrying that their symptoms won't be acknowledged. Increasing awareness among parents, teachers, and healthcare providers is vital, as it can take 7 to 10 years to receive a diagnosis. Schools can assist affected students through staff education, awareness, accommodations, and encouraging open dialogue. Empowering Young Girls Teaching girls about endometriosis enables them to identify symptoms and advocate for their health. By normalizing conversations about reproductive health, schools can help diminish stigma and support those dealing with this hidden. Endometriosis greatly affects school-age children. With increased awareness and support, we can help them succeed both academically and emotionally. Every student deserves to be heard and supported.

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The Four Stages of Endometriosis

Endometriosis is classified into four stages based on the extent, depth, and location of endometrial-like tissue growth outside the uterus. These stages help describe the severity of the disease but do not always correlate with symptoms—some individuals with mild endometriosis experience severe pain, while others with advanced stages may have minimal symptoms.

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 Minimal

Small, superficial lesions or implants of endometrial-like tissue on the peritoneum (the thin lining of the pelvis and abdominal cavity).

 

Minimal scarring or adhesions.

 

Often diagnosed incidentally during surgery for another condition.

 Mild

 

More implants than in Stage 1, but they remain superficial.

 

Slightly deeper infiltration of endometriosis into tissues.

 

Some scar tissue or adhesions may start to form.

Moderate

 

Numerous deep implants and possibly small ovarian endometriomas (chocolate cysts).

 

More significant scar tissue and adhesions, potentially affecting the ovaries and fallopian tubes.

 

Increased risk of fertility challenges.

Severe

 

Widespread deep implants of endometrial-like tissue.

 

Large ovarian cysts (endometriomas) present.

 

Extensive adhesions that can cause organs to stick together (e.g., ovaries, fallopian tubes, bowel, and bladder).

 

Higher likelihood of severe pain and fertility complications.

While staging helps classify the physical extent of the disease, it does not determine the level of pain or impact on quality of life. Many factors, including inflammation and nerve involvement, contribute to individual experiences with endometriosis.

 

For more information on endometriosis, treatment options, and support, visit Endometriosis Canada’s resources.

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Save the Date!

​Join us on March 22 as Endometriosis Canada hosts a special event to celebrate Endometriosis Awareness Month. This year is extra meaningful as we also celebrate the 10th anniversary of our support group—a decade of community, support, and advocacy!

We’re excited to feature guest speakers Dr. Leonardi and Dr. Vidali, who will share the latest updates on endometriosis care and research. Plus, Isabella, the host of the "Let’s Talk Period" podcast will join us for an insightful conversation about living with endometriosis and breaking menstrual health stigmas.

The day will also highlight personal stories, artwork, and even pet photos from our community. It’s sure to be an inspiring, informative, and fun event.

Save the date, March 22! You won’t want to miss it!

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submit a question that you would like to ask the experts and join us on March 22nd as we chat with guests, share patient testimonies, poetry and art work

Our Mission

Who We Are

 Endometriosis Canada is dedicated to raising awareness, providing support, and advocating for those affected by endometriosis.  We strive to empower individuals with knowledge and resources to navigate their endometriosis journey with confidence and resilience.  Sign up for our e-newsletter for all up to date information on our book club, fundraisers and all things endo!

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Our Initiatives

Supporting Endo Patients

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Online Support

Providing round-the-clock online support to individuals battling Endometriosis.

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Fundraising Events

We're thrilled to bring endometriosis education into classrooms, where children first learn about menstruation! Our goal is to empower them with knowledge of healthy periods and boost their confidence. By encouraging open conversations, we aim to break the stigma and create a supportive environment for all students. Together, we can make a positive impact!

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Healthcare Assistance

Guiding and assisting individuals in navigating the complex healthcare system related to Endometriosis.

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Generate an Accessibility Statement

​ accessibility statement from Endometriosis Canada

 

Conformance status

The Web Content Accessibility Guidelines (WCAG) defines requirements for designers and developers to improve accessibility for people with disabilities. It defines three levels of conformance: Level A, Level AA, and Level AAA. endometriosis canada is partially conformant with WCAG 2.1 level AA. Partially conformant means that some parts of the content do not fully conform to the accessibility standard.

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We welcome your feedback on the accessibility of Endometriosis Canada. Please let us know if you encounter accessibility barriers on Endometriosis Canada:​

We try to respond to feedback within 2 business days.

Date

This statement was created on 11 February 2025 using the W3C Accessibility Statement Generator Tool.

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